Be cautious, please

People with MCS or chemical injury always seem to be looking for a product or treatment that will make them better. Perfectly understandable. However, they need to approach all such things with a super large amount of caution. One of the hallmarks of MCS is overreacting or strangely reacting to most anything that comes into their lives.

That means that when a doctor or health-care practitioner or sales person says a certain dose or product will be appropriate, the MCSer's first reaction must be to step back and ask a few questions. Such as, does this person actually understand MCS? Can I start with a very low, partial dose to measure my reaction? Is there any actual evidence to suggest this will help me?

Be cautious, please. Very few people have an in-depth understanding of Multiple Chemical Sensitivities. There is too much uncertainty in the field of environmental illness and medicine to make broad assumptions about the illness, its dynamics, and possible treatments. People with the best of intentions can too often cause things to get much worse. And, of course, some people are simply peddling crap to make money.

That being said, there are a few things out there that have helped people — sometimes substantially. In pursuing treatments and the like, take two large suitcases along, one filled with caution and the other filled with common sense. And if need be, contact the Chemical Injury Information Network to see if they have any information that might help.

It ain't the immune system

Chemical sensitivity — including MCS — is obviously a complex illness. However, research —often spurred by the conferences of the Chemical Injury Information Network (CIIN)— leads us away from the belief that the immune system is the culprit in the illness. For sure the immune system can be screwed up, but that is more a symptom of the illlness. In fact, the immune system can react in various ways in MCS. Sometimes it is depressed— sometimes it is hyper activated—and sometimes it remains mostly uninvolved.

When trying supplements or other treatments focused on the immune system, people must be careful to not agrevate the problem by, for example, doing things to boost the immune system when it is already overactive. I've talked to hundreds of people with chemical sensitivities over the past 14 years who have piled on treatments and supplements —usually based on well-intended suggestions— without regard for the specifics of their situation, their symptoms. It can be a wealth-draining waste or it can make a horrible situation worse.