Sunday, August 26, 2018

Delay in September OTT

Because of a hard drive failure, the upcoming September issue of Our Toxic Times will be delayed by at least a week. If things do not go smoothly, I will let you know.  -John

Tuesday, February 06, 2018

Problem with the link in the Ontario Ministry of Health story in OTT

In January's lead story in Our Toxic Times, there is a link in the paragraph under the headline that points to the Canadian document that is the subject of the story. That link has a problem. Clicking on the link below in this post will take you straight to the document.

Ontario Ministry of Health and
Long-Term Care Is Taking MCS, CFS,
and FM Seriously

Time for Leadership: Recognizing and Improving Care for those with
ME/CFS, FM and ES/MCS by the Task Force on Environmental Health
Phase 1 Report by Howard Hu, MD, Task Force Chair, July 2017
The report is available at: 
www.health.gov.on.ca/en/common/ministry/publications/reports/environmental_health_2017/task_force_on_environmental_health_report.pdf

 However, the problem is easy to fix so you do not need to come to this blog each time. Keep reading.

The problem is that because the link appears to brake over two lines, it actually does not contain the information on the second line and thus will only take you part way to the document. Clicking the link will take you to a page on the Canadian site where you will find reference to and a link to the document.

If you copy the link from the PDF version of OTT, there will be a space in the link address at the point it rolls to the next line, so when you paste it into a browser, simply REMOVE the space after "reports/" and it will take you straight to the document. Sorry for this inconvenience.

The document is 58 pages long and well worth a look.
-John

Tuesday, January 09, 2018

Another site to learn about Porphyria

I just found another Porphyria web site, and this one looks to be helpful as an introduction to the disease. Be sure to also look at the posts from November 02, 2016 and March 25, 2015.

To find and print out an entire list of drugs that have been rated in regard to Porphyria, go to the March 25, 2015 post, click the link under the American Porphyria Foundation, click the "Accept" button under the Database information, and then click the "...click here" link under the blank boxes on Drug Class, Type, etc. Be ready because the whole list is over 50 pages.
-J

Tuesday, November 28, 2017

A Late Update on New Office Hours

I know this is late "news" but better late, etc.

CIIN has newer office hours:
Monday thru Wednesday 10am until 5pm, Mountain Time
Thursday & Friday 10am until noon

Also, we will be closed for Christmas 2017 starting December 21st.
We will be back to work at 10am on Monday January 8th.

Thanks.

Thursday, March 30, 2017

New hours starting April 17

The Chemical Injury Information Network will be changing its office hours starting April 17th. We will be open Monday, Tuesday, and Wednesday from 9am until 5pm, Mountain Time.

This is mostly for our benefit, but it will also help correct a complaint sometimes heard that we close too early, especially for people on the west coast.

This change will not affect anything else about CIIN's operations.

Wednesday, February 22, 2017

Things lost from the Internet can be found



Can’t find something on the internet that used to be there? The “Wayback Machine” should probably be your next step. 

Officially known as the Internet Archive, it is an organization that for over 20 years has been making a very credible attempt to keep copies of everything on the ‘Net. And not just a one-shot picture. It takes copies year after year so you can see how a web site evolves.

If you are unfamiliar with the Wayback Machine, here is a link to a very brief and interesting introduction to it:

By the way, AskBobRankin.com (which you can see is part of the above link) is a tech site I’ve followed for many years. I have found it to be reliable, interesting, and non-geek friendly. You might give it a look too.

p.s. For people with Multiple Chemical Sensitivities, please remember that avoidance is the only sure way to make things better. Easier said than done, yes, but the effort must be made to start regaining some quality of life.

p.p.s. Our web site for the Chemical Injury Information Network is at ciin.org  Give it a look if you are not familiar with us. 

I hope you have a good day, week, month, year, lifetime.
-John Wilson

Tuesday, November 08, 2016

Brain retraining to help deal with MCS

A member gave me this information:


For those who are interested in the brain retraining programs that can help deal with MCS, Ashok Gupta, the originator of the Gupta Programme is giving workshops November 8-9 in Chicago and November 12-13 in Los Angeles. His program is similar to the one by Annie Hopper. More info can be found at www.guptaprogramme.com/live-workshops

 A couple of our members have told us that this kind of brain retraining helped them deal more successfully with the stress of MCS. -J

Wednesday, November 02, 2016

Another MCS/Porphyria & drugs update

This is an update to information on drugs in the March 25, 2015 posting below.

For those who are interested in drugs and MCS, especially those who have looked here before, the South Africa Porphyria web site has made some good changes that will be helpful to MCSers looking for guidance about what drugs may be usable for the chemically sensitive.

Look at the Professionals link, and click on Prescribing in Porphyria.

Please keep in mind a couple of things:
1--Porphyria and MCS are not identical, but Porphyria guidelines regarding drugs have proven very helpful for those with MCS.
2--Porphyria organizations are generally not supportive of MCS. MCS sufferers tend to trigger symptoms at much lower porphyrin levels than regular Porphyria patients.
3--Do not expect MCS or environmental illness to be mentioned on any Porphyria web site, but their drug lists and protocols have proven helpful.

-John

p.s. Antibiotics are commonly referred to under the heading "anti-ineffective."

Thursday, May 28, 2015

CIIN closing its bulletin board

As of June 30th, CIIN will close its bulletin board. It has been up for several years and has very few users. Very, very few. On top of that, trying to keep the spam off the board has been nearly a full time job. When I was able to control the spam, the legitimate comments stopped too.

When we find a place to replace the BB, we will post here and on our Twitter account about it. CIIN is on Twitter at   twitter.com/ourtoxictimes

As of now we have heard about a Facebook page that might be suitable. We'll let you know. -J

Monday, May 18, 2015

The IRS will never...

This is off subject for ToxTalk, but I can't fathom the number of times people have fallen for scams regarding the IRS. And since it is just past the filing deadline, people who have problems with their taxes or who are terrified of the IRS might get hit by these kinds of scams.

So here is a blurb from the IRS web site:

The IRS reminds people that they can know pretty easily when a supposed IRS caller is a fake. Here are five things the scammers often do but the IRS will not do. Any one of these five things is a tell-tale sign of a scam. 

The IRS will never:

    Call to demand immediate payment, nor will we call about taxes owed without first having mailed you a bill..

    Demand that you pay taxes without giving you the opportunity to question or appeal the amount they say you owe.

    Require you to use a specific payment method for your taxes, such as a prepaid debit card.

    Ask for credit or debit card numbers over the phone.

    Threaten to bring in local police or other law-enforcement groups to have you arrested for not paying.

If you get a phone call from someone claiming to be from the IRS and asking for money, here’s what you should do:

    If you know you owe taxes or think you might owe, call the IRS at 1.800.829.1040. The IRS workers can help you with a payment issue.

    If you know you don’t owe taxes or have no reason to believe that you do, report the incident to the Treasury Inspector General for Tax Administration (TIGTA) at 1.800.366.4484 or at www.tigta.gov.

    You can file a complaint using the FTC Complaint Assistant; choose “Other” and then “Imposter Scams.” If the complaint involves someone impersonating the IRS, include the words “IRS Telephone Scam” in the notes.

Remember, too, the IRS does not use unsolicited email, text messages, or any social media to discuss your personal tax issue. For more information on reporting tax scams, go to www.irs.gov and type “scam” in the search box.

The IRS is huge and can be scary, but in my several contacts with it, the people have always been ... what's the word I'm looking for?... Oh yeah, Human! There are certainly exceptions, and those exceptions have bred the image of the IRS being frightening. Just do not let the scary reputation of the agency lead you into being a victim of scammers.  -J

Friday, April 24, 2015

Mast Cells vs MCS

Lately we have been hearing talk of Mast Cell Disorders with a few people thinking Multiple Chemical Sensitivities (MCS) and Mast Cell Disorders might be the same thing. There is a correlation between MCS and Mast Cell Disorders ­ much the same way there is a correlation between MCS and the Porphyrias.

People with MCS have 3* times the amount of the neurotransmitter known as substance P** as normal people. One of the properties of substance P is that it can activate mast cells by nerve conduction. This mast cell activation is what gives MCS sufferers many of the symptoms of Mast Cell Disorders. 

The major difference is that MCS mast cell symptoms wax and wane with exposures which can affect the amount of substance P an exposure is generating.  For Mast Cells Disorders that suffering is constant yet not as extensive as seen in MCS. -C

References:
*  Kimata, H.: “Effect of exposure to volatile organic compounds on plasma levels of neuropeptides, nerve growth factor and histamine in patients with self-reported multiple chemical sensitivity,” International Journal of Hygiene and Environmental Health, February 2004; 207(2):159-163 [CIIN 0112-KIMA-04-005]
**  Meggs, W.J.: "Neurogenic Inflammation and Sensitivity to Environmental Chemicals," Environmental Health Perspectives, August 1993; 101(3):234-238. [CIIN No. 0112-MEGG-93-005a]

Wednesday, March 25, 2015

Update on the existing set of Porphyria drug resources


Update on the existing set of Porphyria drug resources

Doctors trying to work with MCS sufferers can become frustrated by their patient's belief that all drugs are poison to them. And MCSers put themselves at additional risk when they refuse all pharmaceuticals in the belief that nothing can be tolerated. But, while it is true that MCS and drugs can conflict badly, there are some situations that absolutely need drug intervention, and there are web sites that can be of significant help for choosing drugs that could be safe(r) for MCS. So what follows is an update on a September 19, 2012, post on this subject.

 -------------
Chemical sensitivity (commonly known as MCS) and the metabolic illness Porphyria have a major overlap in symptoms, so drugs that are safe or safer for Porphyria patients will more likely be better tolerated by those with serious chemical sensitivities. Keep in mind that porphyria organizations are not generally supportive of MCS, but their drug information and protocols can be very helpful.

The following web sites (listed in no special order) provide information on drugs and how they are generally tolerated by MCS sufferers even though you will not find MCS mentioned by name.

1.  American Porphyria Foundation:
Read the disclaimer if you wish, and then click “Accept.” You will be taken to the actual database. The “Drug class” box says All, but you can choose which type of drugs you are interested in – there is a dropdown list. The next 3 boxes can be left empty. In the “Safety” box, choose OK or BAD. This will limit the results to those drugs that have been shown to be either OK or not OK.
Be sure to read the definitions so you know what you will be looking at.
This site gives the option of printing out their entire list, but bear in mind it is at least 55 pages long.
 
2.  Porphyria drug database for the United Kingdom:
Takes you to the NAPOS database. See the next entry.

3.  NAPOS:
Click “Home” at the bottom of the page. On the next page where it says pick your country, choose the UK so things will come up in English. On the bottom of the next page, which looks like the first page, click “Continue.” On the next page, click “Accept” at the bottom of the box (reading the disclaimer is, of course, optional). On the next page in the “Choice of drug …” box, choose the top “Enter” button and read the key to the classifications. Below that is the place to enter the drug you are interested in using either the brand/trade name or the generic name. And spelling is very important.
This site seems quite comprehensive but is not as convenient for general searching because there is no way I have found to search for anything but specific drugs – one at a time.

4.  European Porphyria Network:
Read the short disclaimer and then click on "Accept and continue" to see their Safe List.

5.  Merck Pharmaceuticals:
Scroll down 2 pages or so. In the box labeled "Drugs and Porphyria*" click on crossed, double-headed arrows to go to Merck's full list.

 The information from these sites comes from respected medical sources and should go a long way toward giving doctors choices and more confidence in talking with MCS patients. These lists/sources are not fool-proof, but they can make the difference between blindly choosing and  making educated choices.

Wednesday, August 20, 2014

Glyphosate is a known teratogen, meaning "monster-maker."

Below is a brief section from an interesting and frightful article from www.truthout.org about the most widely used herbicide in the world. I've seen hundreds of warning stories about Roundup™ but this one caught my attention — it seems especially well written. If you are at all interested in this, please read the whole article by following the link in the headline:

One Little Piggy Had Birth Defects

By Jeff Ritterman, M.D. 
Truthout | Op-Ed Friday, 08 August 2014 

… 
Glyphosate and Birth Defects
  

Glyphosate is a known teratogen, meaning "monster-maker." Studies conducted on rats and rabbits since the 1980s have shown an astonishing spectrum of birth defects associated with glyphosate, including absent kidneys, missing lobes of the lungs, enlarged hearts, ventricular septal defects (holes in the heart), extra ribs, and deformed and absent bones of the skull, spine, ribs, sternum and limbs.

But if birth defects in rats and rabbits have not been enough to get our attention, we are now seeing high rates of spontaneous abortion and birth defects in human infants born in areas where glyphosate is being sprayed. This is particularly true in Argentina, Paraguay and other parts of Latin America where GM acreage has increased significantly. A group of researchers in Argentina noted alarmingly high rates of miscarriages and birth defects in families living within meters of glyphosate spraying. They decided to conduct a study with animals in the laboratory.

The scientists exposed frog and chicken embryos to glyphosate. The herbicide caused birth defects in the embryos similar to those seen in human infants. They were able to demonstrate that glyphosate attacks the Vitamin A (retinoic acid) signaling pathway, which is crucial for normal fetal development in vertebrates. Since the Vitamin A pathway is found in all vertebrates, it is likely that the piglet birth defects, too, can be explained by a glyphosate induced disturbance of this pathway during embryonic development.


    But, there's more.

Glyphosate's Role in Chronic Diseases
 … continued

Yes, there's more and none of it is good. -J

Thursday, August 07, 2014

Drug lists for MCSers revised

Please see the March 25, 2015 post for more current information.
 ______________________
We've told people for some time about 2 web sites that list drugs and whether or not they should be safe or safer for MCS. One of the sites, the one from Merck, is still up and running.

The other one, from the South Africa porphyria organization, seems to be down, gone. That is the one we preferred as it looked to be easier to use and more extensive. But do not be afraid. CIIN has copies of that list, and on the Internet, it can still be found via The Wayback Machine.

If you do not know about the Wayback Machine, you probably should. It is a service that takes snapshots of web sites and stores them in an archive — in theory all publicly accessible sites can be collected. Over time, zillions of sites are stored so they can be retrieved to see what sites used to look like, especially in the case of sites that are gone from the active web.

Anyway, you can get the South Africa list through The Wayback Machine at:
http://web.archive.org/web/*/www.porphyria.uct.ac.za/druginfo/drug-frameset-group.htm

To learn more about The Wayback Machine, try Wikipedia at: http://en.wikipedia.org/wiki/Wayback_Machine

My original post about the Porphyria lists and why they are important for MCS sufferers is in a previous post on September 19, 2012. Please read that, and there is a more recent and revised post updating the whole set of resources.

Saturday, May 10, 2014

Avoid moldy washers

The most efficient washing machines are generally front loaders, but those machines are subject to mold on the door seals. I hear that newer ones don't have that problem as badly. Don't know what they have done to fix the problem, and don't know how effective it works.

I have come up with a way to avoid the mold problem — after doing a load, leave the door open until the seal dries off.

Of course, that means in most cases the machine stays on; the light stays on, the control panel stays lit, and you are wasting energy.

I see two ways to deal with that:
1.  Unplug the machine. If the plug is easy to get to, that is the easiest answer. I'm not sure, but I don't think this will hurt the washer. However, if the plug is hard to reach, or if it is difficult to pull out, you can try method number two. (Which is the way I do it.)
2.  The machine is usually controlled by a switch that the is pushed in when the door closes. I use a folded piece of cardboard that I wedge between the switch and the door frame. After a few tries, I found just the right thickness that holds the switch in without damaging it. This has worked on two machines — no more mold buildup.

I hope this helps someone.
-John

Saturday, December 14, 2013

Cell phones - Not the only answere for long distance calls

Many people with chemical sensitivity issues also have electrical/wireless sensitivity issues (something that we at CIIN know very little about). That is not breaking news. Yet every week I talk to someone who has those issues and is still using a cell phone. Most of those people know it is not good for them, but the cheap long distance rates and convenience overrule them.

The convenience is hard to argue with, but there is an alternative for long distance, at lease for those who have or can get a wired phone. Calling cards! There are many available, and their rates can be really good. Some go as low as 1 penny per minute (I've seen lower too). Here is just a sampling:
callingcards.com
callingcardsplus.com
centcalls.com
pennytalk.com
callingcardsonline.com
And some, if not all, of the cell phone companies offer there own too.

Obviously, some are better deals than others. It pays to make comparisons. I've used Callingcards.com off and on for 10 years or more, and it's worked pretty well. I'm not trying to recommend them, just letting you know I've gone this route successfully. There have been rare times when I could not connect via a pay phone when I've been traveling, but as I said, that's been rare. And calling regularly from your home phone should pose no problems.

Two issues to keep in mind, other than the need for access to a wired line. First, the basic rate is not the only thing to compare. Some have maintenance fees, weekly or monthly. Some have connection fees for each call. You will need to figure what works best for the calling you do – lots of short calls, lots of long calls, a mix. It will take a little study.

Second, contacting these companies is usually done via the internet, and for MCS/ES people that poses a problem. You will probably need someone to do the basic search on line, but it looks like there are customer service numbers you will be able to call. I can't guarantee this, but it should be possible to get a card/set up an account that way. That is how you can "recharge" the card too.

The reason I bring this up in this blog is that electrical sensitivity is not something a person should keep challenging by using cells phones. It seems that, like chemical sensitivity, continued exposures make things worse over time. And MCS/ES people can feel pretty damned isolated. That means the telephone link is important.

By the way, I have found over the years that people who can get their chemical sensitivities under control (this means practicing avoidance seriously) often find their electrical sensitivity gets much better. I hope this helps someone.

Merry Christmas and Happy New Year — and Happy other holidays too.

P.S. For those with ES, you might find the post 'Wednesday, March 07, 2012
Search tool for antennas and towers' below helpful.

Wednesday, March 07, 2012


Search tool for antennas and towers